ICCF Applauds the U.S. House of Representatives Taking the First Steps to Fund Childhood Cancer Research

July 2, 2013 in Uncategorized by admin  |  No Comments

Bethesda, MD—

ICCF is excited to announce that The House of Representatives for requesting that $10M be directed to fund pediatric cancer research at the National Cancer Institute. This will provide funding for the Caroline Pryce Walker Conquer Childhood Cancer Act that was signed into law in July 2008.

Until now, there was no allocation to fund the Act and given the tight economy, it was questionable as to whether the funding would be appropriated by Congress. As a response to this, last month CureSearch hosted an event that brought 450 children impacted by childhood cancer, survivors, their friends and families, and caregivers to Washington, D.C. to urge their congressional representatives to fund pediatric cancer research. ICCF wants to congratulate CureSearch for their amazing work and cover of the news.

The Caroline Pryce Walker Conquer Childhood Cancer Act, named for former Rep. Deborah Pryce’s (OH) daughter who died in 1999 from neuroblastoma, allocates $150M over five years for childhood cancer research. But the monies need to be appropriated each year by Congress. Appropriating funds to NCI for this specific purpose is the first step in ensuring that this critical research receives vital funding.

U.S. House of Representatives Labor, Health and Human Services Appropriations Committee member, Rep. Tom Cole (OK-4), offered the amendment to the Labor, Health and Human Services Committee during their mark up of the appropriation bill. The Congressman was acting on behalf of all children with cancer in this country and at the request of his colleague, Congressman Bob Latta (OH-5). Congressman Latta has been alarmed by a cancer cluster in his District.

“This is an example of a truly bipartisan effort to help research and eradicate a serious health concern that has affected many of our nation’s children,” said Rep. Cole. “I want to thank Chairman Obey [U.S. House of Representatives Labor Health and Human Services Appropriation Committee Chairman] for his willingness to negotiate and make sure this money is put to good use, and Congressman Bob Latta (OH-5) for his efforts to move the Caroline Pryce Walker Conquer Childhood Cancer Act forward.”

Until now, advances in childhood cancer have been dramatic—40 years ago cure rates were less than 10 percent; today, 78 percent overall are said to be cured. Despite the progress in treating childhood cancer, one in five children continues to die, and cancer remains the #1 leading cause of childhood death from disease.

“CureSearch applauds the House of Representatives for taking this initial step to fund the Caroline Pryce Walker Conquer Childhood Cancer Act,” said Stacy Pagos Haller, Executive Director, CureSearch National Childhood Cancer Foundation. “By moving forward to fund this bill, our nation is investing in the promising research of the best collaboration of scientists who will move us closer to the day when every child with cancer is guaranteed a cure.”

The legislative language that directs the funding of the Conquer Childhood Cancer Act will be included in the manager’s amendment and is considered a budget neutral allocation. The manager’s amendment will be applied to the Labor, Health and Human Services Appropriations bill when it goes to the floor of the House of Representatives. The bill is likely to be introduced on the floor of the House within the next few weeks.

In addition to this funding, the Department of Defense appropriation bill was marked up last week. That bill, which contains $2M for pediatric cancer research, is expected to move to the floor of the House for a vote in the next few weeks. CureSearch is grateful for the work of Congressman Tim Ryan (OH-17), Congressman Steven Rothman (NJ-9), Congressman John Culberson (TX-7) and Congressman Chris Van Hollen (MD-8) for their work to secure funding in the defense appropriation bill.

“This funding is a vital component of our nation’s effort to combat childhood cancer and I am proud to have joined my colleagues in this bipartisan effort,” said Congressman Van Hollen, co-author of the Caroline Pryce Walker Conquer Childhood Cancer Act. “So many lives have been touched by this tragic disease, and the groundbreaking work being done by CureSearch National Childhood Cancer Foundation will help millions of children in our country.”

The U.S Senate is expected to start mark up of their Labor, Health and Human Services and Defense appropriation bills in the coming weeks.

#kuddoscuresearch For more information about CureSearch, contact Sally Charney, sally.charney@curesearch.org, 240-235-2205.

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